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  • GBS-chance of recurrence - GBS|CIDP Foundation International Forums
    I had GBS – Miller Fisher Variant in 1997 when I was a teenager, we don’t know what caused my GBS it was either infection or vaccine since both happened at that time Would it still be very rare to get GBS a second time around with this medicine, or would I be “playing with fire” in this case?
  • Average time for full recovery? - GBS\|CIDP
    So anything is possible There may be an average period of recovery of the motor nerves for GBS sufferers which is less than 2 years, but for muscle recovery, I think that the average recovery for those who had severe GBS, the average recovery period must be several years
  • GBS - Adult - GBS|CIDP Foundation International Forums
    GBS – Adult Increase Online Reach by Posting Press Releases on PRWeb by eva last updated 1 day ago 0 Replies
  • Community Forums - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • Elevated Blood Pressure and Heart Rate after IVIG - GBS|CIDP Foundation . . .
    Hello, Two weeks ago I received my first 3 IVIG loading doses for CIDP Although many of my symptoms have improved I have noticed that my heart rate and blood pressure are up from my longterm normal Can anyone tell me if this is something I should worry about or will it go away after a while? Thanks for your help, Petra
  • For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP
    Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
  • Axonal Guillan Barre (AMAN) - GBS\|CIDP
    Hello! I’m reaching out to the few of us that have been diagnosed with the AMAN form of Guillan Barre (Acute Axonal Motor Neuropathy ) I say the “few of us” because from what I know, we are the exceedingly rare form of Guillan Barre… perhaps 3,000 cases world-wide and most of them are in Asia The viral nervous system damage we suffered is due to an attack on our actual nerves (axons
  • CIDP and Alcohol - GBS|CIDP Foundation International Forums
    Not me I have been treated regularly for 18 years, drink about 1 ounce alcohol most every day and so far no effects to my CIDP
  • I need help understanding EMG NCS results. - GBS\|CIDP
    Stacy, WOW! You have alot going on! Are you invested in Calgon?!:D In my opinion, you really need to have your dr go over the results with you There is a site that can give you information on reading emg ncv results-goodsearch it, I found it under absent f waves I think It might give you some information, maybe enough to give you an idea of what questions to ask your dr You are in My
  • Flare Up at 6 months post GBS diagnosis - GBS\|CIDP
    I was admitted on October 6, 2016 with advanced GBS I spent 4 weeks in ICU on a ventilator receiving IVIG during that time and then an additional 4 weeks in rehabilitation hospitals before returning home for outpatient therapy The 6th of April was 6 months since I was admitted About 4 days ago (April 11) I started to struggle with tingling in my feet again It has since spread up to my





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