Centers of Excellence - National Organization for Rare Disorders NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new connections to resources and specialists across our nation
Financial Assistance For Patients With Rare Diseases | NORD NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it The reimbursement process was easy, and payment was received promptly
NORD - National Organization for Rare Disorders That’s why the NORD® Rare Disease Scientific Symposium is bringing together a dynamic community of researchers, clinicians, industry leaders, and advocates to spark the conversations and connections that drive science forward
Rare Diseases Support, Resources Help | NORD Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts Search NORD’s Organizational Database to find disease-specific patient advocacy organizations NORD Rare Disease Centers of Excellence are diagnosing and treating thousands of rare disease patients
NORD Students for Rare® NORD Students for Rare® If you are a high school or college student who wants to become involved helping people with rare diseases live better lives, we have a great program for you NORD Students for Rare® unites students of all disciplines to spread awareness of rare disease and explore future opportunities working with the rare disease community Apply Now
Rare Disease Day - Rare Disease Day Events | NORD Join NORD on Rare Disease Day! Discover impactful sessions, engaging speakers, and community events Raise awareness, foster connections, and make a difference Be a part of the rare disease community’s journey
Resources - National Organization for Rare Disorders Resources Archive - National Organization for Rare Disorders The National Organization for Rare Disorders (NORD®) hosted this webinar for advocates interested in establishing Rare Disease Advisory Councils in every U S state With the support of NORD, other patient organizations and stakeholders in the rare disease community, RDACs are enabling states to strategically identify and address