Your Rare Experience Matters! | Leah Barber - LinkedIn The #LivingRareStudy aims to: • Show the true impact of rare diseases to #healthcare and policy decision makers • Inform programming that improves well-being and quality of life • Provide real-life
Leah Barber Email Phone Number - RocketReach Leah Barber, based in Florida, United States, is currently a Director of Grassroots Advocacy at National Organization for Rare Disorders Leah Barber brings experience from previous roles at Susan G Komen, The Leukemia Lymphoma Society, Tampa Bay Healthcare Collaborative and TampaBay-Job-Links
Alone we are rare. Together we are strong. - rilegislature. gov With a more than 40-year history, NORD is the leading and longest-standing patient advocacy organization for the estimated 1-in-10 Americans living with a rare disease An independent 501(c)(3) nonprofit, NORD is dedicated to individuals with rare diseases and the organizations that serve them