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  • Dysautonomia - Mayo Clinic Connect
    Dysautonomia is incurable and untreatable, all one can expect is to have some of the symptoms treated, not the cause I have been through over 30 different medications unsuccessfully and countless tests and investigations and been diagnosed as Dysauntonomia, in particular Autonomic polyneuropathy
  • Treatment options for Dysautonomia - Mayo Clinic Connect
    My son, daughter, and I all suffer from dysautonomia, and all of our symptoms are quite different I was surprised to discover we all had the same underlying disorder Clearly genetic in our case, but I have done lots and lots of research, and it seems that dysautonomia manifests differently in each person affected
  • EDS and POTS - Mayo Clinic Connect
    In patients with dysautonomia, the normal reflexes of the ANS are thrown off balance The most common form of dysautonomia is called “orthostatic intolerance”, in which patients have difficulty tolerating the upright position Common symptoms are dizziness, palpitations and exercise intolerance
  • Dysautonomia is ruining my life, no help from doctors
    Dysautonomia is an understood syndrome, but is very debillatating It usually shows up when another illness hits My husband has it and it’s destroying his life I never know when he’s going to have an episode of high to low blood pressure so severe that he passes out in his feet or when changing positions
  • Dysautonomia - Mayo Clinic Connect
    After finally getting a copy of The Dysautonomia Project, reading it a few times, underlining certain sentences (sipping water constantly, unable to stand for 30 minutes, dreading things like shopping, heart rate 120’s) I had to admit how much my life has and is slowly changing, so slowly at times that I don’t really notice it while it’s
  • Dysautonomia w out POTS - Mayo Clinic Connect
    Dysautonomia w out POTS Posted by lookingforanswers2022 @lookingforanswers2022 , Feb 5, 2024 I've had issues for years, my dr referred me to a cardiologist for a POTS workup (which is why I am posting here and not the Neuropathy page)
  • POTS Part II: Treatment | Mayo Clinic Connect
    Curious I have recently received a POTs diagnosis along with long COVID and other dysautonomia I am working on getting into physical therapy, but until then what is recommended for the 45 min of aerobic activity 5 days a week?
  • Curious – dysautonomia? - Mayo Clinic Connect
    I had full dysautonomia tests which was "abnormal" but then they said they can't really tell anything because there are no reference values for people my age! (So why test?) I think I will wait to talk with my PCP who really listens, can get something done, and whom I trust She doesn't dismiss me like the electrophysiologist seems to





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