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  • Elevated Blood Pressure and Heart Rate after IVIG - GBS|CIDP Foundation . . .
    Hello, Two weeks ago I received my first 3 IVIG loading doses for CIDP Although many of my symptoms have improved I have noticed that my heart rate and blood pressure are up from my longterm normal Can anyone tell me if this is something I should worry about or will it go away after a while? Thanks for your help, Petra
  • B-12 deficiency CIDP - GBS|CIDP Foundation International Forums
    I was recently diagnosed with “B-12 deficiency” at the Baylor College of Medicine in Houston My initial diagnosis (from the EMG and nerve conduction) was CIDP Blood tests confirmed the “B-12 deficiency” diagnosis My treatment is intramuscular B-12 injections once every three months I have had three injections so far I was supposed to have seen some improvement weeks ago, but my
  • Community Forums - GBS|CIDP Foundation International Forums
    A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
  • CIDP and Parkinsons Disease. Any connection?
    Hi I have had CIDP since 2016 Was lucky to be diagnosed early and have had a good reaction to treatment with mainly my left foot and lower legs experiencing tne verve tingling Recently it moved to my left foot and my balance sarted to be affected Went from IVIG every 4 weeks back to every 3 weeks without much change Other symptoms have presented, includung a n odd gait to my walking
  • Does CIDP cause urinary and fecal incontinence
    I have urinary incontinence and CIDP My urinary was diagnosed before my CIDP Could CIDP be causing my urinary incontinence What about bowel Can it cause bowel incontinence as well? Mike
  • Vitamins and supplements for CIDP
    The MSM is for energy and pain, and the glucosamine is for joint health I think that there are several distinct forms of CIDP which require different treatment strategies However, I do believe that whatever helps remyelination in any body is worth trying for myself So I do a lot of reading on Multiple Sclerosis and HIV sites too
  • CIP CIDP symptoms worsening from IVIG
    Hi, Can CIDP or CIP be worsening from IVIG? I am new to IVIG I have been diagnosed with CIDP which is still mild, mainly nerve pain, partial numbness in legs, feet and arms, muscle twitching, increasing weakness in all limbs, exhaustion after mild exercise I had it for about 2 years, with symptoms steadily increasing After 2 years I was diagnosed with CIDP, very low elevated protein in
  • cidp and twitching muscles
    Does anyone else experience fasciculations (twitching muscles)? I was diagnosed with CIDP about 4-5 years ago I’m currently on a scheduled treatment of ivig every two weeks I’ve actually noticed very little, if any, improvement since I’ve started ivig almost a year ago Prior to that, I was on plasmapheresis for three years but my neuro stopped it because it wasn’t helping anymore I


















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