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- National Organization for Rare Disorders | NORD
National Organization for Rare Disorders NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives Every day, we elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community
- Centers of Excellence - National Organization for Rare Disorders
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new connections to resources and specialists across our nation
- Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it The reimbursement process was easy, and payment was received promptly
- About Us - National Organization for Rare Disorders
NORD was the first national nonprofit to represent all individuals and families affected by rare disease Today we’re the only organization working at the intersection of care, research, policy, and community for all rare diseases
- Leadership - National Organization for Rare Disorders
NORD’s Leadership Team NORD is uniquely focused on purposefully elevating care, advancing research, and driving policy for the 30 million Americans living with rare diseases and their families We have a long-standing and firmly rooted position in the rare disease community, based on nearly 40 years of positive impact, fueled by the breadth and depth of our experience and expertise We
- Massachusetts - National Organization for Rare Disorders
Summary In the latest edition of the NORD State Report Card we analyze all 50 states and Washington, D C , on nine policy issues that impact the rare disease community Each state has their own individual report card (as seen below), but for more background on the report and to view additional resources, please visit the State Report Card landing page
- List of Rare Diseases | A-Z Database | NORD
What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM) The NORD Rare Disease Database includes: NORD Rare Disease Reports
- Rare Disease Education - NORD® Learning
Empowering the Rare Disease community – anytime, anywhere RareEDU®, NORD’s online learning environment, empowers people living with rare
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