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- National Organization for Rare Disorders | NORD
National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives Every day, we elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community
- Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it The reimbursement process was easy, and payment was received promptly
- List of Rare Diseases | A-Z Database | NORD
What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM)
- About Us - National Organization for Rare Disorders
NORD was the first national nonprofit to represent all individuals and families affected by rare disease Today we’re the only organization working at the intersection of care, research, policy, and community for all rare diseases
- Rare Diseases Support, Resources Help | NORD
Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts Search NORD’s Organizational Database to find disease-specific patient advocacy organizations NORD Rare Disease Centers of Excellence are diagnosing and treating thousands of rare disease patients
- Resources - National Organization for Rare Disorders
Resources Archive - National Organization for Rare DisordersThe National Organization for Rare Disorders (NORD®) hosted this webinar for advocates interested in establishing Rare Disease Advisory Councils in every U S state With the support of NORD, other patient organizations and stakeholders in the rare disease community, RDACs are enabling states to strategically identify and address
- Donate - National Organization for Rare Disorders
A grant from your donor-advised fund helps NORD provide vital care and services to the rare disease community Contact your fund manager or financial institution to recommend a gift to NORD (Tax ID: 13-3223946) and receive an immediate tax deduction Let us know of your gift at donate@rarediseases org so we can thank you for your generous support
- What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor Research can help identify new diseases, expand our understanding of known diseases, and potentially improve diagnosis and care The NORD Living Rare Study is one option that is open to individuals who are undiagnosed but suspected of having a rare disorder
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